11年前我捐了骨髓給一位9歲的女孩。她叫Ruby,今年20歲!! Ruby已經上大學了,大一。因為她離開了家鄉所以今年第一次沒有跟家人慶祝第二個生日。雖然我也不在她身邊,我還是要唱歌給她聽!大家請跟我一起祝她第二個生日快樂!
Ruby,雖然認識妳很久了,到現在都還沒有見到本人。我相信總有一天我們會看到彼此。先跟你說一下,到時候我會給你一個大大的擁抱。
如果網友有任何問題關於骨髓捐贈可以問我。這事件改變了我的生活。我很願意分享我的經驗。
Happy 11th Anniversary, Ruby! We always celebrate during this week in May, when you got your bone marrow transplant, a day after I donated mine. I was 24 at the time, and you were only 9.
Although you are away from home and there was no cake this year, I still wanna sing you Happy Birthday! I can't believe how time flies and you're already a freshman at uni!!
Happy Second Birthday, Ruby. We've known each other for so long now but we've never met in person. I do know however, that we'll get to meet each other one day. Just know that when the time comes you'll be getting a big big hug from me.
Love,
Dawen korkor
#骨髓捐贈 #bonemarrowtransplant #bethematch #jointheregistry
同時也有1部Youtube影片,追蹤數超過361萬的網紅Dan Lok,也在其Youtube影片中提到,The Yang family have spent years in and out of hospitals with their two children Jerry and Lillian – both battling Leukemia and needing a blood stem c...
bethematch 在 Dawen 王大文 Facebook 八卦
Ruby,我們每年都要一起過你的第二個生日。這傳統是從14年前就開始了。每年這時候也會鼓勵大家捐贈骨髓。我們因為這樣就認識了。今年差一點點錯過。因為疫情的關係,全世界的經常生活節奏都亂掉了。還有,你從去年就發現了甲狀腺發炎。你有跟我說你好累,第一個第二個生日都不想再過了。
聽你分享這些我都很難過,因為我無法體驗這種恐懼,這種疼痛。我只能說我會永遠支持你。你也後來做了決定要繼續慶生。住在墨爾本的你就買了起士蛋糕,甚至還另外加了草莓擺在上面。住在台北的我為了跟你一起享受時刻,也買了一塊起士蛋糕,還學了你特別加了之前對它沒興趣的草莓。沒想到這次吃下去就覺得很好吃,哈哈哈。
認識你已經14年了,但卻還沒遇到本人。幸好可以透過網路保持聯絡。這次也要請大家特別幫妳打氣。祝你六月開刀順利!你真的很勇敢,也讓我自己能增加點勇氣,去面對自己的事。Ruby,保重。祝你第二個生日快樂。 🎂🍓
Ruby, it’s your ‘birthsary’. 14 years ago I met you through bone marrow donation. Since then we’ve celebrated every year that you have stayed leukemia free.
But we almost didn’t celebrate it this year. Covid-19 has upended everyone’s lives and the world seems more troubled than ever. Furthermore, after discovering last year, that you developed thyroid cancer from years of chemotherapy as a child, you shared with me that you were demoralized. 🙈
I didn’t know what to say. I can’t possibly know or understand what it feels like to have overcome a life threatening cancer as a child, only to be faced with a different one as an adult. 😔
All I know is that I will always stay by your side. Even if with you being in Melbourne, and me in Taipei. Thank God for the internet. You are my sister, after all, at least scientifically speaking, hehe. But in all seriousness, even before I learned your name, I knew you were family.
I know you are scheduled for surgery in June, and I’ll be praying until my face turns blue.
And I’m glad our tradition continues! Once I saw your cheesecake, I went out and bought myself a slice, so that we could celebrate together. I even put strawberries on it, just like you did. I don’t even like strawberries, haha. Just kidding, they actually are quite tasty, I’m figuring that out now!
Ruby, bless you, and keep safe and healthy. Happy 14th Second Birthsary. 🎂🍓
#bethematch #donatebonemarrow #donate
bethematch 在 Dawen 王大文 Facebook 八卦
今天是5月3號,Ruby的第二個生日,算是她的重生日的13週年。今年我還快遞一個包裹給她,內容有我的第三張專輯,太空人冰淇淋,還有生日卡。
13年前,24歲的我捐了骨髓給9歲的她。從那時候到現在,我們一直都透過網路保持聯絡。她現在大二,主修物理治療。因為她最近忙著準備考試,我希望這次的驚喜可以在她休息時候讓她放鬆,聽音樂,吃個點心。
Ruby今天跟我分享恢復這13年的過程真的不容易。她那時白血癌治好了之後,過了12年又發現甲狀腺發炎。去年因為開刀把甲狀腺拿掉,也休學幾個月。Ruby說如果她媽媽那時候沒有飛來陪她,她就不會知道要怎麼度過。開刀復原之後,她就重生了第三次。
她講到這裡我聽的非常感動。我發現過了13年的時間,她一直都好珍惜每一天,絕對不把生命當作理所當然。
每一年的今天她會謝謝我還有謝謝家人的陪伴,也會被她稱呼超級英雄。但我這時候想跟他說:Ruby,你才是真正的超級英雄。
想了解更多關於骨髓捐贈請參考:http://btcscc.tzuchi.com.tw/index.php…
我去年有分享自己的骨髓捐贈故事:http://dawenmusic.com/zh/2018/05/03/我的骨髓捐贈故事/
Ruby, Happy 13th Birthsary. Health and happiness from Taipei. ❤️
13 years ago, I donated my bone marrow to a 9 year old girl. Fast forward to now, and we have become friends although we have never met in person. Ruby continues to inspire me and has changed my life as much as I have changed hers.
Last year, she was diagnosed with thyroid cancer due to radiation treatments she'd undergone as a child. Ruby shared with me how difficult it was at that time, even taking time off from college, and having her mom fly over for emotional support. Ruby ended up getting her thyroid removed and recovering completely. She considers her recovery her third 'rebirth'day.
I can't help but be so moved listening to her story today, on the anniversary of her second 'rebirth'day. Life is so precious, it certainly bears repeating. If anything, today reminds me not to take life for granted. Not for a second.
#bonemarrowawareness #bethematch #bonemarrowdonor
bethematch 在 Dan Lok Youtube 的評價
The Yang family have spent years in and out of hospitals with their two children Jerry and Lillian – both battling Leukemia and needing a blood stem cell transplant. Jerry was lucky enough to have a match on the Be The Match registry. Ruko donated marrow to him 5 years ago and they were able to meet for the first time!
Lillian, unfortunately, does not have any matches on the Be The Match registry and needs to find a life-saving blood stem cell donor.
Sign up today and give someone like Lillian a second chance at life.”
For information and registration, Text DanLok to 61474 or visit BeTheMatch.org/DanLok
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This video is about Young Leukemia Survivor Meets Life-Saving Donor For The First Time (Live).
https://youtu.be/CNvguP1GB2o
https://youtu.be/CNvguP1GB2o
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bethematch 在 Be The Match - YouTube 的八卦
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