很沉重的話題.....這名23歲的年輕男子因為年幼時得過川崎氏症，當時已發燒超過二個星期才被診斷出川崎症，發現時心臟已經都擴張，且無使用免疫球蛋白治療，已經嚴重影響到心臟，在青少年時期都避免他做過度激烈的運動，直到2014年心臟再度發生問題，現在這名少年已經去當天使了...這篇是那位少年的母親寫的自述告白，希望大家能多注意川崎氏症的孩子。
川崎氏症不恐怖，恐怖的是它延誤了治療所帶來的後果，不是來嚇唬大家，但我非常非常慶幸在泡菜發病前就知道名為川崎氏這病，甚至我比醫生更早發現、更早警覺，所以泡菜才能夠在治療黃金期內完全恢復。
分享給大家泡菜的發病過程
小心，發高燒的後果壞掉的可能是心臟...當父母的絕對不可不知道的疾病! 川崎氏症
http://bluerin0726.pixnet.net/blog/post/104754286…
KD in Adulthood
My son contracted KD in 1991 when he was just over a month old. I remembered him having to endure the fever for 2 weeks and not one GP could tell us what was wrong. In the end, we brought him to Thomson Medical where after a battery of tests, the attending pediatrician Dr. Ang Ai Tin diagnosed him to have KD. At that time, there was no such thing as IVIG hence my son actually went through the whole inflammation process without medication.
As a result, both his coronary arteries were dilated with the right one being worse than his left.
We were referred to Dr. William Yip for further heart assessment/scans and were on follow up weekly for a month, then every 2 weeks for a while and finally, once a month for 6 months. His left artery aneurysm resolved when he was a toddler. My son had been on aspirin since discharged from Thomson in 1991 till his passing in July last year.
During his teens, he was active in his football and NCC despite being told by the cardiac doc to keep off strenuous sports. Let’s just say all was well during his school years. He had his annual cardiac scan and by his late primary years, the right artery had gone back to almost normal. Annually he was still having his heart scan. In his late teens, he underwent a treadmill stress test, an angiogram and a MIBI (myocardial perfusion test) on separate occasions. The results were good and showed that his arteries were patent and his heart was good.
As he was given the all clear that he was doing ok, I guess we got complacent. After his last heart scan in 2010, my son defaulted the subsequent annual check ups. I was not staying with my son hence my verbal reminders for him to go for his check ups went into deaf ears.
Feb 2014, my son had his first heart attack. He felt chest pains and was unable to breathe well and was admitted to TTSH A&E. He was found to have a heart attack and given strong anti-coagulants to unblock the artery. The cardiac consultant told us that his right artery had a HUGE aneurysm and my son was “lucky” that only a clot was formed. Had the aneurysm burst, it would have been a sudden death. He then discussed with us the option of either a stent to “close up” the aneurysm and keep the artery patent OR a coronary artery bypass graft (CABG) to bypass the aneurysm. The former would be a keyhole surgery whereas the latter would be an open-heart surgery. He also said he would consult his fellow cardiac colleagues as to which treatment is better as both carried its own risk.
After much discussion, a stent was the chosen treatment as it’s less risky and its prognosis was good with proper after care. The after care included minimal strenuous activity for 3 to 6 months and he had to be on very strong anti coagulants for a year. After which the medication will be reviewed.
The stent operation went well and my son responded to the stent well. He was back to his usual lifestyle and all appeared well. He was very diligent in his medication and we even went for our last holiday together 4 weeks post surgery.
In July 2014, he had some bleeding from the rectum for a few days. He endured the bleeding not wanting to worry us but subsequently told us, as he was feeling very weak. His face was very very white according to my ex-husband and he was immediately rushed to TTSH A&E. He was found to have internal hemorrhage and was transfused with 3 bags of blood. His hemoglobin level was 4 (normal is about 12).
Meanwhile, all his anticoagulants were stopped as the doctors suspected it was the cause of his internal bleeding. On Sunday (13th July) after he was transfused with the blood, his bleeding stopped.
He had a nasal endoscopy done on Monday to determine the cause of bleeding but nothing was found. On Wednesday, they did another endoscopy from the rectal end and again nothing was found. Meanwhile he had already stopped his anti coagulants for 4 days.
On Wednesday night, my son suffered another heart attack. He was being resuscitated for almost 2 hours but they just could not jump-start his heart. Towards the last part, they managed to run a catheter through his right coronary artery to break up the clot but it was too late. The heart just never beat again.
I feel very strongly about getting the heart checked even though an all clear is given. As we don’t have x-ray vision, we can never ever tell when the arteries might act up again hence it is important never to be complacent.
~~~ Magdalene
